Welcome to Post-PolioUK.org
Welcome to the website of Post-PolioUK (formerly
Leicestershire Post-Polio Network), an information, support
and self-help network of and for survivors of the viral
disease Poliomyelitis (once known as Infantile Paralysis).
Many of us are now suffering the diseases little known late
effects; fatigue, new muscle weakness, pain (in muscles and
joints) and less commonly breathing difficulties, muscle
cramping and twitching, swallowing difficulties and voice
changes, muscle atrophy (loss of muscle bulk), sleep
disturbances and cold intolerance. These new problems,
commonly internationally known as Post-Polio Syndrome, are
poorly understood and often unrecognised in the U.K.
We work to
- Collect and disseminate information about the Late
Effects of Polio (LEP) and Post-Polio Syndrome (PPS) to
Polio survivors, their families and carers, and health and
social care professionals.
- Provide a model for local networks to develop.
- Raise awareness within the health care system,
government and the wider community about issues affecting
Polio survivors.
- Outreach via all available media, primarily the
Internet and print media, to enable isolated Polio
survivors to manage and protect their health and
functioning more effectively.
Our site is designed for accessibility and ease of use. We
hope you find it useful.
Disclaimer
Please read the following carefully.
And remember as with all health related matters
you must consult a
qualified medical practitioner: The information
presented by this site is intended to be of interest
to relatives and sufferers of Post Polio Syndrome.
This information is prepared and written by members
of the Leicestershire Post Polio Network and does
not purport to be of a medical nature. This site
can accept no responsibility for anyone not seeking
the correct medical advice. Although the members
try to be accurate in preparing and researching
the articles no responsibility can be accepted for
any errors or omissions in the information.
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